Extinguish Hunter Syndrome 5K
This summer we had the amazing privilege of attending a 5K in honor of Hunter Syndrome children and families in effort to raise funds for the high financial demand put on companies to research for our boys and for the families themselves.
Personally, I was proud to have my little brother running the race! And guess what... HE WON! I was so, incredibly proud. It meant so much to me that my little brother, star of Huntington University's Cross Country team, would run in honor of his nephew. Praise the Lord! That was just icing on the cake for me!
Hudson was also honored and given a badge of "courage" after the race, as well. We are thrilled to be able to have partners in this journey!
http://www.extinguishhuntersyndrome.com/home
Personally, I was proud to have my little brother running the race! And guess what... HE WON! I was so, incredibly proud. It meant so much to me that my little brother, star of Huntington University's Cross Country team, would run in honor of his nephew. Praise the Lord! That was just icing on the cake for me!
Hudson was also honored and given a badge of "courage" after the race, as well. We are thrilled to be able to have partners in this journey!
http://www.extinguishhuntersyndrome.com/home